Supporting children and young people with Autism Spectrum Disorder through bereavement

Authors

  • Katie Koehler

Keywords:

ASD, autism, special needs, children

Abstract

Abstract

Children with Austism Spectrum Disorder (ASD) may react to a bereavement in different ways to neurotypical children. This article explores some of the underlying perceptual and processing difficulties observed in children with ASD that may affect their understanding of death and their reaction to a bereavement. But children with ASD, like any others, need their grief both recognised and understood, and will need opportunities to express how they feel. The article gives some suggestions which may help children with ASD, and includes a list of helpful resources.

References

American Psychiatric Association (2013). Diagnostic and Statistical Manual of Mental Disorders (DSM-5) 5th edition. Arlington VA: American Psychiatric Association.

Allison HG (1992). The management of bereavement in services for people with autism. London: National Autistic Society.

Barnes JL, Baron-Cohen S (2012). The big picture: storytelling ability in adults with Autism Spectrum Conditions. Journal of Autism and Developmental Disorders 42(8) 1557–1565. doi: 10.1007/s10803-011-1388-5

Baron-Cohen S (1995). Mindblindess: an essay on autism and theory of mind. Boston: MIT Press/Bradford Books.

Baron-Cohen S (2002). The extreme male brain theory of autism. Trends in Cognitive Sciences 6 248–254. doi: 10.1016/S1364-6613(02)01904-6

Baxter AJ, Brugha TS, Erskine HE et al (2015). The epidemiology and global burden of autism spectrum disorders. Psychological Medicine 45(3) 601–13. doi: 10.1017/S003329171400172X

Blackman N (2003). Loss and learning disability. London: London Worth Publishing.

Brugha TS, McManus S, Bankart J et al (2011). Epidemiology of autism spectrum disorders in adults in the community in England. Archives of General Psychiatry 68(5) 459–466. doi: 10.1001/archgenpsychiatry.2011.38

Chakrabarti B, Baron-Cohen S (2006). Empathizing: neurocognitive developmental mechanisms and individual differences. Progress in Brain Research 156 403–417. doi: 10.1016/S0079-6123(06)56022-4

Dodd P, Dowling S, Hollins S (2005). A review of the emotional, psychiatric and behavioural responses to bereavement in people with intellectual disabilities. Journal of Intellectual Disability Research 49(7) 537–543. doi: 10.1111/j.1365-2788.2005.00702.x

Firth I, Dryer R (2013). The predictors of distress in parents of children with autism spectrum disorder. Journal of Intellectual and Developmental Disability 38(2) 163–71. doi: 10.3109/13668250.2013.773964

Forrester-Jones R (2013). The road barely taken: funerals, and people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 26(3) 243–256. doi: 10.1111/jar.12022

Howlin P (2003). Outcome in high-functioning adults with autism with and without early language delays: implications for the differentiation between autism and Asperger syndrome. Journal of Autism and Developmental Disorders 33(1) 3–13. doi: 10.1023/A:1022270118899

Lipsky D (2013). How people with autism grieve, and how to help: an insider handbook. Jessica Kingsley.

Maskey M, Warnell F, Parr JR, et al (2013) Emotional and behavioural problems in children with autism spectrum disorder. Journal of Autism and Developmental Disorders 43(4) 851–9. doi: 10.1007/s10803-012-1622-9

McRitchie R, McKenzie K, Quayle E, et al (2013). How adults with an intellectual disability experience bereavement and grief: a qualitative exploration. Death Studies 38(3) 179–185. doi: 10.1080/07481187.2012.738772

Miniscalco C, Nygren G, Hagberg B, et al (2006). Neuropsychiatric and neurodevelopmental outcome of children at age 6 and 7 years who screened positive for language problems at 30 months, Developmental Medicine & Child Neurology 48(5) 361–366. doi: 10.1017/S0012162206000788

Moseley DS, Tonge BJ, Brereton AV, Einfeld SL (2011). Psychiatric comorbidity in adolescents and young adults with autism. Journal of Mental Health Research in Intellectual Disabilities 4(4) 229–243. doi: 10.1080/19315864.2011.595535

NICE Guidelines CG128 (2011). Autism in under 19s: recognition, referral and diagnosis. Available from: https://www.nice.org.uk/guidance/cg128 [accessed 20 October 2016].

Rawlins DC (2000). Bereavement and adults with autism in a residential setting. Good Autism Practice 1(1) 21–28.

World Health Organization (2014). The ICD-10 classification of mental and behavioural disorders: clinical descriptions and diagnostic guidelines. The World Health Organization.

Woodgate RL, Ateah C, Secco L (2008). Living in a world of our own: the experience of parents who have a child with autism, Qualitative Health Research 18(8) 1075–1083. doi: 10.1177/1049732308320112

Worden JW (2008). Grief counselling and grief therapy: a handbook for the mental health practitioner (4th ed). New York: Springer Publishing Company.

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Published

2016-09-01

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